Kuala Lumpur & Selangor Albinism Association (KLSAA)

E-mail: [email protected]
Tel: 019-3257565
FB: Kuala Lumpur & Selangor Albinism Association

 

Persatuan Metabolik Malaysia(Malaysia Metabolic Society (MMS))

Website: www.mms.org.my
E-mail: [email protected]
Tel: 013-3901706
FB: malaysia metabolic society

Persatuan Penyakit Jarang Jumpa Malaysia (Malaysian Rare Disorders Society (MRDS))

Website: www.mrds.org.my
E-mail: [email protected]
Tel: 019-7714543
FB: Malaysian Rare Disorders Society
IG: officialmrds

Persatuan Motor Neuron Malaysia (Motor Neuron Disease (MND) Malaysia)

Website: www.mnd.org.my
E-mail: [email protected]
Tel: 017-8838839
FB: mndmalaysia

Persatuan Sindrom Apert Malaysia

E-mail: [email protected]
Tel: 013-5944084
FB: Apert’s Malaysia (Persatuan Sindrom Apert Malaysia)

Persatuan Spinal Muscular Atrophy Malaysia (SMAM)

Website: www.iknowsma.com
E-mail: [email protected]
Tel: 012-4824242
FB: spinalmuscularatrophy.malaysia

Pertubuhan Kebajikan Pesakit Ichthyosis Malaysia (PEKIM)

E-mail: [email protected]
Tel: 012-4467112
FB: Pertubuhan Kebajikan Pesakit Ichthyosis Malaysia

Persatuan Akromegali Malaysia (MyAcro)

Pertubuhan Penyakit Lisosomal Malaysia (Malaysia Lysosomal Diseases Association (MLDA))

Website: www.mlda.com
E-mail: [email protected]
Tel: 019-6899620
FB: Malaysia Lysosomal Diseases Association

Rett Syndrome Association of Malaysia

E-mail: [email protected]
Tel: 013-2203386
FB: RETT Syndrome Malaysia