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Our Mission

To provide a unified voice to speak for patients and families affected by Rare Diseases
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Our Activities

On 22 April 2018, RDAFM introduced the foundation to registered and informal rare disease
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Our Background

One of the outcomes of the 2nd Malaysia Conference on Rare Disorders 2013
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ABOUT US

Working Together for the Betterment of the Rare Disease Community

Malaysian Rare Disorders Society (MRDS), Malaysia Lysosomal Diseases Association (MLDA) and Malaysia Metabolic Society (MMS) initiated the formation of the alliance.

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Links to Local

News/Information

Malaysian Orphan Medicines Guideline 2020 (4 January 2021)

Keynote Speech at the APEC Virtual Policy Dialogue on Rare Diseases in Malaysia & the Asia-Pacific (16 December 2020)

Next Steps for Rare Diseases in Malaysia: Improving Access to Treatments (27 October 2020)

Care of People with Rare Diseases Should Not Be Compromised in the Time of COVID-19 (7 May 2020)

Click to see our Affiliates

Rare Diseases Alliance Foundation Malaysia

Address :

No. 7, Level 2, Bangunan Sultan Salahuddin Abdul Aziz Shah

No. 16 Jalan Utara, 46200 Petaling Jaya, Selangor.

Telephone:
 011-5772-4663

Email:
[email protected]

 

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