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Our Mission

To provide a unified voice to speak for patients and families affected by Rare Diseases
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Our Activities

On 22 April 2018, RDAFM introduced the foundation to registered and informal rare disease
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Our Background

One of the outcomes of the 2nd Malaysia Conference on Rare Disorders 2013
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ABOUT US

Caring For Rare Diseases

Malaysian Rare Disorders Society (MRDS), Malaysia Lysosomal Diseases Association (MLDA) and Malaysia Metabolic Society (MMS) initiated the formation of the alliance.

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Future Event

Our Launching November 2019 (TBA)

Latest News

From RDAFM

Trustees Meeting 10.June.2019

Meetings With The Ministry Of Health

Board Of Trustees’ Meeting

Rdafm Pre-Launch Meeting

Click to see our Affiliates

Rare Diseases Alliance Foundation Malaysia

Address :

No. 7, Level 2, Bangunan Sultan Salahuddin Abdul Aziz Shah

No. 16 Jalan Utara, 46200 Petaling Jaya, Selangor.

Telephone:
 011-5772-4663

Email:
[email protected]

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